Heads at Ease pillowcase project

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Comment by Sue-Pillowcase lady on November 10, 2009 at 12:38am

cute designs Maryellen!

Comment by Maryellen on November 9, 2009 at 6:27pm

here are 10 pillowcase with more to come.

Comment by Sue-Pillowcase lady on November 9, 2009 at 12:38pm

A friend of mine is following Noah on carepages. This was posted last night and the Navy mom wave is just coming. haha.
Merry Christmas!!
Posted 10 hours ago
Hello Everyone!

What a week! Scott and I have had a hard time wrapping our brain around how much support and compassion we have received from people all around the world!!! Noah was the 17th most googled topic on Thursday and 12th on Friday!! Unbelievable!!!!!!!

Thank you to everyone for the support! Thank you to everyone that listened to my requests for peace. Thank you to Mindy for setting up security for my front door today!! Thank you to the South Lyon Police, Fire, and Post Office for the help and support over the past week. Today was the first day that I could relax. We had a person sitting out front guarding the door. My family and I didn't have to worry about whether the person walking up was going to knock or ring the doorbell. Yes, I do have a sign on the door.

I just wanted to note something interesting. Last Saturday, I posted a little note on this carepage -- it said that we were celebrating Christmas this week. If you would like to send Noah a card, send me an email and I will give you my address!! Our friends and family have repeatedly asked us for something to do to help. Asking for a Christmas card was something simple that many people could do. They posted it on Facebook and BAMMMMM!!!!!!! Next thing I know, we are receiving thousands of cards and packages. Tuesday -- 64, Wednesday -- 416, Thursday -- 2,600, Friday -- 5,100 and Saturday -- ??????? At least 10,000. Yes, you read that right -- at least 10,000.

We are opening and reading each and every card. This is taking some time. It is just humbling, shocking, incredible, astounding... the outpouring of love for one sick little boy.

Friday night, Noah loved meeting Santa. He wasn't so sure about the fire truck or Santa coming on the fire truck. We waved from the balcony. Noah feels safe in my bedroom. That's where he spends most of his time. He wouldn't come out of the bedroom so Santa went in. He sat on the floor and opened presents with Noah, Scott, and I. Then I went out to make sure everyone was doing well and Santa sat right next to Noah. Noah wrapped his arms around Santa's neck and wouldn't let go.

The smile on his face was worth it. He smiled from ear to ear.

Saturday, Noah loved opening presents and let me tell you -- there isn't a shortage of them!! We had a crew at the house and he would pick which person he wanted to play with and that person went into the bedroom and played. When he had enough, he would sleep. We decided to have Santa come on Friday for two reasons. 1.) Santa needed to have time to get back to the North Pole. 2.) Noah needed a day of rest between the big events.

Today was a very merry Christmas! Noah, my mom, and I woke to a Christmas tree in our front yard, fully decorated with wrapped presents underneath. Noah thought that was the coolest thing. Again -- the smile said it all. He spent most of the day in my bedroom. No shocker there! He was stingy with his happy face today. He slept quite a bit and he seems to be hurting again.

Noah is having pain in the left elbow and upper body. This is all new pain. However, he's stubborn as a mule and won't let me give him any IV pain meds. We keep increasing his Methadone which we did on Friday. That hasn't seemed to help much. You can see the difference in him. You can see him slowing down. You can see him in pain and just plain getting tired. He's just at that point.

No matter how hard this is or how painful it is, Scott, my family, and I can say one thing -- Noah had Christmas today. And for that, I am grateful.

Merry Christmas Everyone! The world helped make it special for Noah, my family, Scott, and myself. I can guarantee one thing -- This week was a week that none of us will ever forget.

Thanks

Comment by Ally on November 9, 2009 at 12:02pm

Yeah, that is a riot, Proud Mom!

Comment by Sue-Pillowcase lady on November 8, 2009 at 11:33pm

I love it! let me know when he deploys and maybe we can do his unit or at least his cube. That's how I started-with my son's cube.

Comment by Proud ABH Mom on November 8, 2009 at 10:10pm

I laughed out loud tonight...got an e-mail from my sailor that is out at sea at the moment...I had been asking him for ideas for Christmas...he will be deploying in early 2010 and figuring out what to buy a 21 year that lives on a ship is quite the challenge... (as you all know)... He wrote...

Probabaly sounds weird but pillow cases, go through those like crazy, ...

Ahhh...if he ONLY knew :) Smiling from ear to ear here...

Comment by Ally on November 8, 2009 at 9:58pm

Now I know where you all were for the past couple of days...sewing!
Way to go,Matt's mom (he'd be sooo proud) and
Kudos to Derek's mom...(he'd be high fiving Matt).
You mom's are... GREAT! (yes, I'm shouting ) :)

Comment by Sue-Pillowcase lady on November 8, 2009 at 9:54pm

Matt's mom will you email your picture? Barbara, how did the craft fair turn out?
love the picture. will you email me also?

Comment by Barbara (Derek's Mom) on November 8, 2009 at 8:18pm

Here's a pic of the 27 I have ready to go.

Comment by Sue-Pillowcase lady on November 8, 2009 at 7:17pm

Matt's mom, you are doing a great job! thank you so much! are you having fun?

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