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Comment by Rhonda8881 on February 27, 2011 at 5:54pm

I was never able to get disability because my doctor would not recommend it.  Good Luck with yours.

Comment by BEVERLY (kyles mom) on February 4, 2011 at 5:26pm

Glad to have you join us Rhonda8881, that is great, your fibro getting much better after quiting work. I have had fibro for about 8 yrs, worked with it as a nurse for 5 yrs and 3 years fighting to get my disability

 

Comment by Rhonda8881 on February 4, 2011 at 3:56pm

Hello!  My name is Rhonda; my sailor is at Pearl Harbor, a submariner and I have had Fibro since 1973 or 74.  Was not diagnosed until 24 years ago.  I quit work about 3.5 years ago and have been much better since then.

Comment by BEVERLY (kyles mom) on December 31, 2010 at 4:27pm

navywife, that is great that your husband understands what you are going thru, there are so many with fibro and people think they are crazy. i was a nurse before i got sick, my husband is great also, and i have a great doc. thanks for accepting me as your friend, i can help you in anyway let me know. hope your new year  starts off great

Comment by NavyWife:) on December 31, 2010 at 2:16pm

Beverly, My husband will be doing AT and going in as E3.  He has gone to several appointments with me and so he has been very understanding about my fibro.  I love him so much and he truely is the most amazing person in my life.  Please feel free to message me anytime.

Comment by BEVERLY (kyles mom) on December 31, 2010 at 2:07pm

welcome navywife, i have suffered with fibro for about 7 yrs now, have good days and bads days, but my bad days are not as bad as they have in the pass. you sound like I have a lot of health problems also, bunion fixed on one foot and the other will have to done sometimes. my son has been in the navy 3 yrs and 3 more to go, he is in va, he just had surgery for acl tear, he is doing good, he flies in the helicopoters. if there is anyway i canhelp you let me know and welcome to the group

Comment by NavyWife:) on December 31, 2010 at 2:00pm

Good Afternoon! I am a new NavyWife and my Sailor will be shipped to BC in Feb, 2011.  I was diagnosed with Fibro in the beginning of this year.  For a long time I have been having pain since I was in High School with all my joints.  Im only 30, but my body truely feels like it is 90.  Yes, I have been told I am too young for arthritis and all that, but yea I wasn't given a good body to begin with, but I make the best of each day.  My doctor did prescribe me with 60mg Cymbalta, and Flexeril that I take a half in the morning and a whole one at night. I also have to take Vitiamn D because when the doc took my blood for further testing, my levels where 14.5 :(  I do have good days and bad days.  To keep my husband motivated I too stepped up to the plate and started walking on the treadmil, stretching and cycling.  This has helped, but I wish I could do more.  Soon enough I will be able to do water aeoribics.

I can not do any running, jumping jacks, pull ups, lunges, some yoga stances.  The reason for this is my feet are pretty much trashed as well.  I have really bad curves in my bones in my feet that do not give good stability by standing. I also have bunions and hammer toes. I have gone to the podiatrist in Oct. 2009 due to a fracture in my sesamoids on my left foot. I had to wear a boot from Oct - Feb due to that fracture.  The last end of 2009 to this year has been nothing but medical problems.  Quite frankly, it is really annoying to know that you have to slow down and take it easy while other ppl your age are skiing, skating, or doing all those fun things. Anyway, I pretty much wrote a book to you all, but Im looking forward to knowing all of you, and keep on going even though you feel your body can't. Happy New Year!! Stay Safe :)

Comment by BEVERLY (kyles mom) on September 21, 2010 at 7:10pm

welcome Lynne, Ihave had fibro for 7 yrs and I take several meds for mine, some days are good and some are not so good our son has been in the Navy 3 yrs, he is in Norfolk,VA, he is an E-4 and flies on the HM-14 Seadragon helicoptor

Comment by BEVERLY (kyles mom) on September 14, 2010 at 7:44am

hello ladies I have been on savella 100 mg twice a day alone with tramadol 100mg 3xs day and flexeril 10 mg 3xs a day and at nite some meds tohelp me sleep. I have been doing hormones and the testerone helps with the pain, like it has taken it away, i dont know what the connection is but i have been having great days doing things that i have not done in a while, u ladies are in my prayers daily cause no one knows wha we deal with on a daily bases.

Comment by BEVERLY (kyles mom) on March 16, 2010 at 8:24am

hello Bev i am so sorry to hear that you have been thru so much. i will remember u in my prayers. kyles is still in haiti he is on the bataan, but right now he is off the ship on land in cuba doing something. while he is on the ship i hear from him everyday but when off the ship i dont know when i will hear from him, he has called several time, that was so great just to hear his voice. i sent him a package with his junk food ( sunflower seeds, beef jerky) after 30 days the package found it way back to me, so i took it back to the post office to try again, this time it made it in 8 days. may be you need to seitch to savella it works a lot better for me than the lyrica. yes right now i am doing great, i dont know if i told you about the hormone inplants which is all natural, i get my levels checked by blood then if my levels are low i go get inplant they are about the size of a peice of rice, they make a little incision in your back side, i get estrogn, testerone, progesteron, b-12, and thyroid meds. the inplants are to last upto 3 months mine are lasting about 6 to 7 weeks, my body just eats it up. the day after i have my inplants i feel great about as good as i did before i got sick, i am doing an exercise class now with out any problems, but i can tell you the day when all the hormones are gone the fibro pain comes back, the fatigue is back, it is something about the testerone that helps with the fibro, at first they were not giving me too large of does and i did not feel to good, so i talkedd with them about it then they gave me a large dose i felt like i was on top of the world. may be there is a doc in your area that doaes this. i have not felt this good in 7 years, i still have my days but they are no wjhere as bad as they were. i dont know ihave been going to church, who knows may be god is doing this, he is so gooo. there has been a lot of stress this past month my son-n-law is now in iraq for a year, so my daughter get his 3 boys everyother weekend and some days during the week, so i try to keep her busy so she dont have so much free time to think about everything, she is holding up good so far, she is a strong young lady. how is your son boing. i did not mean to write u a book. hugs and my prayers are with you i hope u feel better soon.

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